We went in because Lukas' pediatrician called and said that his bloodwork came back showing that his ANA was positive. Apparently ANA positive result is often found in kids with autoimmune disease like Lupus, Juvenile Arthritis, and some other random disorders. Honestly I was sort of excited about his bloodwork showing something since every other test had been negative and we really needed a direction. (The follow-up blood work did not show any sign of these issues).
So we went in a saw a new neuro. She didn't know about Lukas' PDD-NOS diagnosis yet, so I caught her up on his recent diagnosis. Her response was, "Well I'm glad that he's already been diagnosed because if not, I was going to do that today!"
Is it that obvious?
Apparently.
Sigh.
5/1/12
4/10/12
Not a River in Egypt
Even as I sat in the Developmental Pediatrician's office I was still in denial.
Weeks before when I could sense the Neurologist was asking questions about autistic behaviors, I responded with, "He's not autistic, he's just weird!"
Six months before I was telling my friend Heidi about his tantrums and nest building behaviors and made some crack about Lukas being on the autistic spectrum. (She would tell me later that my comment stuck with her since usually people don’t joke about that kind of thing unless there was a reason).
Despite all of the evidence, I was still in denial as the Developmental Pediatrician explained the things she observed and where she thought he fell on the autistic spectrum (PDD-NOS).
I took a deep breath, ready to argue and then I saw him.
He sat at my feet arraigning a bin of toy cars in a perfectly straight line.
Bumper to bumper. Perfectly straight line.
And I knew the diagnosis was correct. But oh, it was hard to hear.
All we wanted (and prayed for) while on this wild goose chase of figuring out what was wrong with him – was something that wasn’t life shortening. The doctors kept throwing around scary diseases, most of which were fatal.
Autism wasn’t even on our radar (but looking back, it was…but you know that whole denial thing).
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