Not Cystic Fibrosis

We got the call this afternoon. It's not CF. Still no closer to knowing what it IS, but another thing off the list.

Coming up: Consulting with her pediatrician Tuesday the 19th.

Wash. Rinse. Repeat.

For now, we're at the beach for the weekend with my (N) parents, brother and sis-in-law, nephew and of course...the wonderful S and my loving husband M. Will post pictures soon.



Hope said...

Thank God it's not CF!! I know it still is so hard not having answers. I feel your pain. Hang in there.

CFMama said...

I will be praying that you find some answers soon. Stay strong!!

CFMama said...

No matter what it winds up being, I am sure you will be relieved just in knowing. That is how I was when my Nathan was diagnosed with CF.

Carrie said...

My daughter was undiagnosed for the first five months of her life, so I know the struggle you feel. If you ever need any help working with possible diagnoses and things, just let me know, I've wracked up quite a medical knowledge just as I know you have!