5/6/09

Tests Set...Prayers Needed

Tommorrow 5/7 - Visit with the nephrologist in the hopes he can uncover the cause of the high blood pressure.

Friday 5/8 - Brain MRI at 1:00pm. Hopefully this will show if there is any structural abnormalies that could be causing her balance and central apnea issues.

Tuesday 5/12 - Sweat test to rule out Cystic Fibrosis.

We are hoping to find answers for our little girl.

Thank you for your messages of hope and your prayers are always welcome.

2 comments:

FinlaysonFamily said...

Hi there! So, I know that you don't know me but I found your blog through Brent Riggs family blog. I have to say that there are many similarities between your daughter and my second daughter. Katie has been diagnosed with Developmental Coordination Disorder and Cerebral Palsy. She has severe balance issues and is delayed in all areas - she will be 3 in July but is testing at 21 months. Your daughter has similar phyical features as Katie, too - we are constantly asked if she has a form of Downs (she doesn't). She had her tonsils, adenoids, and ear tubes put in as well as having her labial frenulum and the one under the tongue clipped, too (all when she was two). Major ear infections, snoring, breathing issues, and choking! I will pray for you and your girl - and if you ever want to talk, let me know! Angie

Rebekah said...

Hi there.

My son has cystic fibrosis and if you have any questions, I would be happy to help.

I know that it would be such a relief to have a diagnosis of some kind. I hope it isn't CF but that you do get some answers.